I am writing on this blog in the hope that others will read and see that there are other adults that suffer with TCS. I have had a difficult time finding other adults that have been going through this.
Mine started in June of 2010 when I had my first surgery for TCS, I also have Spina Bifida Occulta. Things got better for a while but then my numbness became worse, walking has become difficult, and I have a tremendous amount of pain. I went to a neurologist who requested a EMG which showed extreme weakness in my left leg. He referred me back to my neurosurgeon who informed me my cord had retethered at L 3 due to scar tissue. I am scheduled for surgery on March 22, 2011. I am really dreading this surgery as my recovery from the other was difficult.
I would love to hear from others that have the same condition and have had to have multiple surgeries due to TCS.
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