It has been 3 months since my last Surgery. I had follow up with neurosurgeon on Wednesday to review latest MRI and he said I have developed a spinal fluid leak. We are going to monitor it for 6 months and if it is better it means more back surgery.
I continue to struggle with feeling in my foot and leg. I also have horrible migraines which the doctor feels may be due to the leak.
I would love to hear from others who have suffered with this disease.
My parents never knew I had Spina Bifida and I guess back in the 1950's they didn't test for it during the prenatal screening. I did have symptoms growing up but I was always told you are just clumsy or pick up your feet.
